Hello! I am Stephanie DeLair, and this is my blog a Marfan’s girl. Living with Marfan syndrome isn’t something I chose, but it has become apart of my life. It has taught me a lot about weaknesses, strength, endurance, grace, love, etc. From all of the appointments, medications, surgeries, and life doing it’s thing I get down in the gritty about having Marfan’s syndrome. I discuss the good, the bad, and the ugly while using my faith to help me through difficult times.

I want to share my story of having a rare diagnosis, with medical facts and spiritual truths that helped me get through the really tough times. So whether you have Marfan’s, love someone who does, or are walking through your own storm, I hope this space brings encouragement. This is where faith meets messy, and grace takes over and makes it beautiful.♥️